Dream...Imagine & Believe

IMAGINE … if you can:

When a child is born …parents DREAM and IMAGINE their babies walking for the first time and saying their first word. They IMAGINE their children playing sports, taking ballet lessons, graduating high school, getting accepted to college, getting married…

Now, IMAGINE a 2 year old, a healthy child has trouble skipping and jumping and the doctor saying no problem “she will outgrow it.”

IMAGINE that 2 year old’s life shattered forever when MRI results says LEUKODYSTROPHY.

IMAGINE your child is diagnosed with an incurable, fatal genetic disorder called Vanishing White Matter (VWM). This disease causes neurological deterioration, and, eventually, coma and death. Many people with this condition do not usually live longer than their 20s.

AND IMAGINE there is a researcher — but to continue with VWM research — funds are needed. There is HOPE !

IMAGINE now, you going to your computer and donating what you can, $10, $20, or whatever you can to help save a child’s life.

If you cannot make a donation, you can help by sharing this message with family and friends and perhaps they would be able to provide some assistance at: https://www.crowdrise.com/FindaCureforVWM/fundraiser/vwmresearch

“We ourselves feel that what we are doing is just a drop in the ocean. But the ocean would be less because of that missing drop.”

BELIEVE there will be a cure in my lifetime….BELIEVE in power of share!

Leukodystrophy Awareness

Raising Leukodystrophy Awareness while searching to find a cure for Vanishing White Matter Disease (VWM) -VWM is a rare genetic disorder that results from mutations in a gene known as EIF2B.

Find a Cure for VWM

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It is all about raising awareness for leukodystrophy called vanishing white matter disease (VWM) ~ while searching to find a cure...!

Leukodystrophy Awareness

Raising Leukodystrophy Awareness while searching to find a cure for Vanishing White Matter Disease (VWM) -VWM is a rare genetic disorder that results from mutations in a gene known as EIF2B.

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