We Can’t Cure VWM Alone…We Need Your Help!

It’s not easy to cure a disease. It’s even harder to cure a disease most people haven’t even heard of. But it’s not impossible… In the last couple of years alone, we have made made amazing progress in raising awareness of VWM and funding research toward developing a cure. But we didn’t do it by ourselves… We did it with the help of people like you. Which is why we are asking you to join us in taking action.

WHAT CAN YOU DO TO HELP?

YOU CAN MAKE A DONATION

It’s simple, but meaningful. We appreciate any and every contribution, and every dollar that you give helps us in our mission to fight to give our children a chance at choosing their future. Click here to donate : https://www.crowdrise.com/FindaCureforVWM/fundraiser/vwmresearch

YOU CAN HOST A FUNDRAISER

It doesn’t have to be grand or elaborate… We’ve had everything from middle school fund drives to driveway lemonade stands. And every single one of them has helped. If you want to hold a fundraiser, or have an idea you want to talk about, please don’t hesitate to contact me: djskwirut@yahoo.com or nyree@savingchloesaxby.com

YOU CAN SPREAD AWARENESS

This is also an easy one: just simply tell others. The entire success of #findacureforvwm is due to compassionate people embracing our story and our hope, and taking action to tell others about it. Simply telling people you know about this disease is a great place to start, but here are a couple other easy things you can do:

YOU CAN CONTACT US

If you want to learn more about how to get involved, whether with the #findacureforvwm or a specific family in your area, just contact us … we’re always happy to talk.

Do what you can…Small amounts of money can have outsized impact in the world of‪#‎VanishingWhiteMatterDisease‬ (VWM). Because ‪#‎leukodystrophies‬ are so rare, therefore research relies heavily on private donations. Even if it’s a small amount, please consider donating:

1) http://www.savingchloesaxby.com/
 2) Crowdrise:
3) By check to : AFTAU
39 Broadway, Suite 1510
New York, NY 10006
Attn: Joe Huber/Orna VWM research

***Note: All 3 ways above go directly to Prof. Orna Elroy-Stein VWM research ****

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