Maintaining Basic Mentality While Battling a HC

The reality of living daily life when weighted down by a HC of ANY kind is a situation in itself to have to deal with. Just adapting to life in itself can be difficult. I have written about times of frustration that could greet me every morning when the first thing I would do to start all my days would be to get in my WC. I like to think I’m beyond that “frustration” of it, but acknowledging it is still in my psyche. Just imagine all the little things you remember that you forgot to do before your head hit the pillow and just how important it is in regards to having to spend time and bother to get back up! Waking up in the middle of the night and having to go to the bathroom is a real killer!! Anyway….

In the past few decades, it is becoming much more accepted as a normal occurrence of life to have to find ways to deal with whatever stresses we have developed. Just even our need and ability to have many ways to release the “weight of it” has become a topic of life in itself. Everyone, definitely, wants time alone to think or cry or whatever just to get back to their comfortable self. We all seek our own path. I have found that just getting away on my own helps me immensely. Having that ability now with my scooter is something that I mentioned before, but I doubt if I really underlined the true fulfillment that it brought back into my life.

Having a way to be out on my own is something that I have become bound and determined to highly support. The actual idea of having a scooter may be something that some people have not even thought about. Just imagine how many people can’t say enough about “getting away”. Now, just imagine those who cannot physically accomplish that. (This is a very good place where my thoughts of how someone somewhere is in worse shape than me fits perfectly). I’m not sure of the ideal way for each of us to have our own time, but little things do enter into my consideration. How about for those who are not physically able to get out and about even just getting them headphones so they could sneak away to their own little corner of the…..house, yard, Assisted Living, or whatever. Places where they could look out the window. I remember when I was much younger and living in Florida how I used to make fun of elderly people taking rides on their 3 wheel-bicycles. I just failed to consider their possible inability or trouble walking. This was a beautiful refreshment for them. Balance is one of those unappreciated talents we are naturally born to develop and it is sorely missed when it’s gone. It makes me think about how we all tend to take many things for granted until we don’t have them anymore.

To those with HCs of their own…..many times just knowing you have one is hard to accept, but pick yourself up and stay strong upstairs. Just don’t constantly think about it as being a huge negative for that is bound to be the major ingredient to a recipe of depression. Just keep your focus on the positive. I say this a lot to myself and I find that I have to say it, often. “All we can do is try” does NOT really fit this situation. Stick with it until you get noticeable improvement and times will indeed get easier. They always do.

One thing I have found is that it helps to learn as much as is available. Learn as much as you want about your very disability. Even doing that can help you understand and accept things a bit easier. I have heard of relatives who assume that what they have is what was running in the family. ‘My grandmother had it and so I do, too’. Part of that in itself might be true, but that’s not the best or complete way to look at it. It is, also, what is looked upon as a fact of a condition and it’s not always correct. You can learn more than you thought you knew. I was told that my problems were genetic related, but I know of no one in my past family who also had PN. If you have a difficult time finding time to look into it choose someone who would be glad to take care of that for you. Another way to nurture yourself, as I wrote about before, is to surround yourself with other people. I have many friends. My friends are so very special and they, unknowingly, help me stay away from the Dangerous Depression Zone! This helps me stay positive. This keeps me smiling.

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Here’s a main part of my life in dealing with Peripheral Neuropathy. I sure hope with some of the thoughts and feelings I’ve expressed that this can help anyone who is as frustrated as I was!

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Janice Corak

Janice Corak

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