The Association of Medical Research Charities have partnered with F1000, an organisation which works to transform the way science is communicated, to provide a new publication platform. The platform, called AMRC Open Research, is available to 23 UK-based medical research charities, including Parkinson’s UK.
This new way of publishing will help all results of research funded by these organisations to be quickly published for all to see. This will provide significant benefits to researchers and those affected by removing traditional barriers and delays to publication, making research results freely available in a matter of days.
What does this mean for researchers?
Researchers funded by the participating charities will be able to share any aspect of their research results they wish in an immediate and transparent way.
AMRC Open Research will also be a member of Open Research Central, allowing the platform to enable collaborative work funded or based at more than one of the organisations to publish their work. This encourages a level-playing field for all outputs.
Nicola, a Parkinson’s researcher says:
“Dissemination of research findings is an essential aspect of scientific research. It requires careful and timely planning to ensure that the new discoveries have the greatest visibility and become quickly available to people who could benefit from them, including fellow researchers, clinicians, and patients. Therefore, I think that the idea of this new publication platform to give visibility to findings exclusively generated from Charity-funded research is exciting and innovative. The large number of Charities that support this initiative is a guarantee for its success.
“As a researcher, I think that AMRC Open Research will allow a more effective dissemination of research data and will make them easily accessible to colleagues and most of all patients. Let’s not forget that patients have a crucial role in research and certainly are in the front line in the fight against their diseases. Keeping them updated on our progresses in research is an obligation”.
What does this mean for people affected by Parkinson’s?
Expert peer review reports will be published alongside the articles, which will allow those interested in the research results to understand the quality of the charity funded research.
And the many people involved in raising valuable funds for these charities will be able to see the results of all their hard work more easily.
Lesley, a person affected by Parkinson’s says:
“Willing volunteers are essential to run clinical trials and participants subsequently become a pivotal part of the trial team. These trials test our bodies to the limit and represent a huge commitment.
“The end of a trial is an emotional roller coaster and the psychological effect on a condition, which is intolerant of stress and anxiety, cannot be underestimated. Inclusion of the patient in the outcome of the trial is a minimum requirement which reinforces the patient’s sense of worth, exclusion can have a devastating effect.
“The anxious anticipation of results is inevitable, as is the stress caused by any delays. Every effort should be made to expedite their publication. Research currently takes far too long and any attempt to speed up the process is welcome. Time is a commodity those with Parkinson's do not have”.
This is a really exciting time for research, but one of the challenges to delivering new and better treatments faster is the time it can take to publish results.
This new publishing platform will help to ensure that all results of research studies funded by participating charities can be rapidly and widely shared to accelerate the progress of research.
AMRC Open Research will open for submissions later in the year. In the meantime, sign up for updates.