Camille Nebeker: Informed Consent, Self-Consent

Camille Nebeker, assistant professor of Family Medicine and Public Health at UC San Diego, at the Quantified Self Symposium .

Part of the results of the Blood Testers experiment will be a checklist to help people doing self-study or group self-study think through what they need to know to make a decision to opt in. — Camille Nebeker
Camille Nebeker is a research ethicist helping redefine ethical frameworks for participant-led research. Building from a multi-year discussion in the QS Public Health community about the role of Institutional Review Boards in participatory research, Camille’s talk proposes a new approach for ethical evaluation appropriate for these novel projects.

Camille Nebeker presenting a continuum from traditional academic research to participant-led research.