Camille Nebeker: Informed Consent, Self-Consent
Part of the results of the Blood Testers experiment will be a checklist to help people doing self-study or group self-study think through what they need to know to make a decision to opt in. — Camille Nebeker
Camille Nebeker is a research ethicist helping redefine ethical frameworks for participant-led research. Building from a multi-year discussion in the QS Public Health community about the role of Institutional Review Boards in participatory research, Camille’s talk proposes a new approach for ethical evaluation appropriate for these novel projects.
Highlights from the QS Symposium 2018
Introduction to the Quantified Self Symposium 2018
Reza Mirza: The History and Future of Single-Subject Science
Hugo Campos: 10 Years With An Implantable Cardiac Device, Still No Data Access
Jana Beck: Carb Intake and 60 Lipid Measurements
Azure Grant: Lessons from Blood Testers, a Participant-Led Project
Dorothy D. Sears: Circadian Rhythms and Cardiometabolic Health
Carsten Skarke: Characterizing the Chronobiome with “Supertrackers”
Whitney E. Boesel: Cholesterol Variability Across Postpartum Menstrual Cycles
Xiao Li: Finding the Signal in Rich Self-Collected Data
Jeffrey Olgin: Data Aggregation for N-of-1 to “N-of-Many-Ones”
Dana Lewis: Social Infrastructure for Participant-Led Research
Camille Nebeker: Informed Consent, Self-Consent
Steven Steinhubl: Where “All of Us” Meets All of Us
Sunita Vohra: What N-of-1 Can Do