“Advocate for yourself. You should get to choose who you share your data with, who gets to see it, and if you want to donate it to research.”
Howard Look is the founder and CEO of Tidepool.org, a non-profit open source effort to build better software for diabetes. He became a leading advocate for access after his daughter was diagnosed with type 1 diabetes in 2011. Like many parents of children with diabetes, Howard went from knowing almost nothing about the disease to having to help manage it every day. Diabetes, he came to realize, had a serious data problem. Most of this crucial, life-saving data was locked on devices that wouldn’t let patients effectively use it. In this talk, Howard describes the role of Tidepool and the larger challenge of opening up diabetes data.
Howard and Tidepool.org were recently recognized as a White House Champion of Change. You can find out more and read Howard’s excellent blog post here:
Howard Look is CEO of Tidepool, an open source, non-profit effort building an open data platform and applications that reduce the burden of managing Type 1 Diabetes. Previously, Howard was on the founder’s team of TiVo, and was VP of Software at Pixar and Amazon. You can find him on Twitter at @howardlook.
Patients are the Real Scientists, Joyce Lee
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