“I didn’t want to wait. I don’t want to die in my sleep. We are patients who are not waiting.”
Dana Lewis became a reluctant self-tracker at the age of 14 when she was diagnosed with type 1 diabetes. Dana and her partner Scott Leibrand have been developing a DIY artificial pancreas that is built on top of the data flows from Dana’s continuous glucose monitor. In this talk, she describes the role that access to data plays in the DIY pancreas, with immediate and profoundly positive effects on her life.
For more on the DIY pancreas go to DIYPS.org. You can also read our longer interview with Dana and Scott here:
Dana Lewis created and moderates #hcsm, the international health care & social media community on Twitter. For her day job, she manages digital content strategy for Providence Health & Services. She is the inventor of #DIYPS and also founded the #OpenAPS movement, an open and transparent effort to make safe and effective basic Artificial Pancreas System technology widely available to more quickly improve and save as many lives as possible and reduce the burden of Type 1 diabetes. You can find her on Twitter at @danamlewis.
Giving You a Choice, Howard Look
Quantified Self Labs is dedicated to sharing stories and insights about the role of data access for personal and public health. We invite you to follow along on quantifiedself.com and @quantifiedself. If you have an interest in joining our growing community and attending the 2016 Quantified Self Public Health Symposium please get in touch.