Rare and Orphan

1 in 10 Americans is living with a rare disease, but 95% of their diseases still lack treatments or cures. Researchers and clinicians must constantly justify their choice to dedicate time and resources to rare diseases instead of more common ones. Families in the rare disease community work together to raise awareness and funding, but it remains an uphill battle.

Go to the profile of Grace Niewijk
Grace Niewijk

Freelance science writer and editor. Received my degree in molecular biophysics and biochemistry at Yale before launching slightly sideways into writing.