The Struggle of Rare and Orphan Diseases

One out of every 10 Americans has a rare disease, but each disease affects fewer than one in 1,000 people. How can we find cures, especially when more common diseases demand so much attention and funding?

Grace Niewijk
Sep 19, 2017 · 6 min read

Listen to this story

--:--

--:--

Image for post
Image for post
Image for post
Image for post
Image for post
Image for post
Image for post
Image for post

Grace Niewijk

Written by

Freelance science writer and editor. Received my degree in molecular biophysics and biochemistry at Yale before launching slightly sideways into writing.

Grace Niewijk

Written by

Freelance science writer and editor. Received my degree in molecular biophysics and biochemistry at Yale before launching slightly sideways into writing.

Rare and Orphan
Rare and Orphan
Rare and Orphan

About this Collection

Rare and Orphan

1 in 10 Americans is living with a rare disease, but 95% of their diseases still lack treatments or cures. Researchers and clinicians must constantly justify their choice to dedicate time and resources to rare diseases instead of more common ones. Families in the rare disease community work together to raise awareness and funding, but it remains an uphill battle.

1 in 10 Americans is living with a rare disease, but 95% of their diseases still lack treatments or cures. Researchers and clinicians must constantly justify their choice to dedicate time and resources to rare diseases instead of more common ones. Families in the rare disease community work together to raise awareness and funding, but it remains an uphill battle.

Welcome to a place where words matter. On Medium, smart voices and original ideas take center stage - with no ads in sight. Watch
Follow all the topics you care about, and we’ll deliver the best stories for you to your homepage and inbox. Explore
Get unlimited access to the best stories on Medium — and support writers while you’re at it. Just $5/month. Upgrade

Get the Medium app

A button that says 'Download on the App Store', and if clicked it will lead you to the iOS App store
A button that says 'Get it on, Google Play', and if clicked it will lead you to the Google Play store