Keeping a Positive Pace

6 Steps to Stay Positive about Life with a Rare, Chronic Disease

Grant Von Pein
Small Steps

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Photo by Jeremy Lapak on Unsplash

Hi guys. It’s Grant again. So, if you’re familiar with my writing, then you know that I am a very positive and happy individual. In this article, I will provide for you my own personal step-by-step guide for sustaining this state of mind while living with a chronic disease.

Now, for those of you who have never heard of pulmonary arterial hypertension (PAH), I will give a brief description.

The short definition of PAH is high blood pressure in the lungs. It is one of the least known about, rarest chronic diseases on the planet. It is a very serious disease that without proper treatment from a specialist can lead to a life expectancy as short as a year or two after diagnosis.

I didn’t know anything about this disease until around six months ago when I was diagnosed with it. I have taken the time and made the effort to educate myself and others about PAH to bring as much awareness as possible to it, and will continue to do so.

Exactly how rare is this disease? I’m glad you asked. Currently there are about 333 million people in the United States. Of those 333 million, less then 50,000 people have been diagnosed with PAH, the majority of whom are young to middle-aged women.

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Grant Von Pein
Small Steps

Born in Portland Oregon in 1970. Love the rain. I like taking pictures, playing guitar, and writing. I write all kinds of stuff, including music and poetry.