The Data Revolution: Unlocking Healthcare’s Potential with Privacy and Collaboration

Introduction

In the digital era, data has evolved into a precious asset that can revolutionize healthcare systems. The ability to collaborate and derive meaningful insights from vast data sets holds immense promise for enhancing patient outcomes, fostering innovation, and advancing medical research. Nevertheless, issues pertaining to privacy, security, and compliance present formidable obstacles to unlocking the full potential of data collaboration in healthcare. In response to these challenges, a novel approach known as data clean rooms has emerged, providing a secure and privacy-preserving environment for collaborative data analysis.

In this article, I will attempt to delve into the concept of data collaboration and explore the advantages and applications of data governance and data cleanrooms in healthcare.

It’s Time for Healthcare Orgs to Get Serious About Data Governance and Data Privacy

Instead of outwardly sharing data, it is easier to invite selected partners into secure data environments and allow them to effectively leverage shared data without direct access to your datasets.

While not originally tailored for clinical care purposes, securely isolating records within a trusted data environment can assist organizations in swiftly recovering compromised data systems.

For Chief Information Security Officers (CISOs) in the healthcare sector, safeguarding networks and associated data poses a formidable challenge.

In 2023, the industry experienced 463 data breaches, impacting more than 60 million patient records, all while grappling with a shortage of cybersecurity experts (Source: The HIPPA Journal). The financial toll of breaches has also reached new heights, with the average cost of a healthcare data breach now surpassing $4 million.

For healthcare providers, this typically entails making one of two choices: either tightly restrict access to data or entrust a reputable tech leader like Snowflake, relying on their preconfigured cloud security tools to guarantee data security.

Data Governance and Policies with Snowflake

Snowflake’s data governance and policies empower organizations to exercise precise control over data access, ensure the secure sharing of data, maintain compliance with regulations, and seamlessly integrate with various data tools. This comprehensive approach to data governance makes Snowflake a compelling choice for organizations looking to manage and secure their data effectively. Let’s see how we can apply some of the policies on top of the sample patient table.

Sample Table
RBAC, DAC, Views & UDF’s
Column Level Security & Row Access Policy
Dynamic Data Masking
External Tokenization
Row Access Policy in Detail
Conditional Policy
Tagging
Tag-Based Policy
Classification
Anonymization

Understanding Data Collaboration in Healthcare

Data collaboration within the healthcare sector encompasses the act of sharing and jointly analyzing health-related data among various stakeholders, including healthcare providers, research organizations, and tech enterprises. Through the combination of varied datasets, which may include electronic health records (EHRs), genomic information, clinical trial outcomes, and population health statistics, data collaboration facilitates a holistic comprehension of disease patterns, treatment effectiveness, and trends in population health.

Challenges and Benefits of Data Clean Rooms

Despite the immense potential of data collaboration, it encounters several hurdles, particularly concerning data privacy, security, and regulatory conformity. In healthcare, safeguarding patient privacy and upholding stringent regulations like the Health Insurance Portability and Accountability Act (HIPAA) stand as pivotal priorities. Conventional data-sharing methods, such as centralized data repositories or unrestricted data access, often grapple with limitations in effectively addressing these concerns, thus impeding fruitful collaboration.

This is where data clean rooms step in. A Snowflake data clean room represents a controlled and fortified environment wherein authorized users can access and scrutinize data, all while upholding privacy safeguards and aligning with legal and ethical requisites. Clean rooms offer an intermediate solution between data accessibility and rigorous privacy controls, enabling collaborative analysis while mitigating the risk of privacy breaches.

Data Privacy Safeguarding: Data clean rooms harness privacy-enhancement technologies and protocols to safeguard sensitive patient information. Through de-identification methods, data is either anonymized or pseudonymized, ensuring that individual identities remain obscure. This approach empowers researchers and analysts to work with robust datasets while upholding patient privacy.

Protected Collaborative Ecosystem: Data clean rooms establish a fortified environment in which stakeholders can collaborate and analyze data, all while upholding stringent access controls. Access permissions are granted based on well-defined roles and authorizations, guaranteeing that solely authorized individuals can engage with the data. This secure framework fosters trust and facilitates seamless collaboration among entities.

Adherence to Regulatory Standards: Compliance with regulations such as HIPAA is paramount in the healthcare domain. Data clean rooms incorporate mechanisms to uphold compliance, employing audit trails, data usage agreements, and data governance frameworks. These measures ensure that data analysis endeavors align with legal and ethical guidelines, affording protection to both patients and organizations from regulatory ramifications.

Enhanced Data Quality and Insights: Through the processing of diverse datasets within a data clean room, researchers and analysts can derive insights that are more precise and comprehensive. Clean rooms enable the integration of both structured and unstructured data, facilitating a holistic perspective of patient health, treatment outcomes, and disease patterns. The high-quality data accessible within cleanrooms elevates research validity and empowers data-driven decision-making.

Applications of Data Clean Rooms in Healthcare and Use Cases

Data Collaboration Practices and Clean Rooms can yield an array of advantages for the Healthcare and Life Sciences sectors, encompassing:

Clinical Investigation and Trials: Data collaboration empowers researchers to merge and assess data from diverse origins, including electronic health records (EHRs), clinical trials, and genetic data. This facilitates a deeper understanding of disease mechanisms, the discovery of potential drug targets, and the development of personalized therapies.

Advancements in Drug Development: Collaborating on data can accelerate the drug development process by enabling pharmaceutical companies to access and share data from various sources, such as clinical trials, patient registries, and healthcare claims databases. This can help to identify new drug candidates, improve clinical trial design, and streamline regulatory submissions.

Enhanced Population Health Management: Data collaboration aids healthcare providers and payers in pinpointing populations at risk, monitoring health outcomes, and designing focused interventions aimed at enhancing patient well-being and curbing healthcare expenses.

Precision Medicine: Data collaboration contributes to the creation and validation of novel biomarkers, the identification of subpopulations exhibiting distinct treatment responses, and the formulation of personalized treatment strategies for individual patients.

Patient care coordination: Healthcare providers can use data clean rooms to share patient data securely to coordinate care between different providers. For example, a primary care physician can securely share patient data with a specialist to ensure that the patient receives the best possible care.

Health insurance: Insurance companies can use data clean rooms to securely share claims data with healthcare providers to ensure that claims are processed accurately and efficiently.

Research: Healthcare providers can use data clean rooms to share research data with other researchers in the field. This can help to accelerate research and development of new treatments and therapies.

Care models are rapidly evolving to more digital / remote settings and with that an opportunity presents itself, to reduce cost of care and at the same time provide a better, smoother patient experience. The introduction of Data Clean Rooms to health care providers will leverage remote patient monitoring and wearables data to provide a more personalized, interactive health experience for the members across health care settings while maintaining patient’s data privacy.

Hospitals and insurance companies can securely share patient / subscriber data to analyze therapies at a lower cost. Genomics data can be combined with EMR (Electronic Medical Records) data and payer/provider data to build ML models to drive better care at lower cost across the industry.

One of the biggest opportunities of all is with pharmaceutical researchers and doctors operating within a secured Data Clean Room ecosystem. It can allow them to pool data and better understand how to quickly bring life-saving innovations and treatments to the market.

Sample Healthcare Data Cleanroom

What more can you do besides data governance and data privacy?

The human factor remains a prominent security concern across various industries, with healthcare being particularly vulnerable. Even minor lapses or oversights can lead to severe and costly repercussions for healthcare institutions.

Security awareness training equips healthcare staff with the essential knowledge required to make informed decisions and exercise due diligence when handling patient data.

While we’ve explored safeguarding healthcare data through privacy-enhancing technologies, the foundation starts with individuals. Physicians, nurses, administrative personnel, lab technicians, and managers all play a crucial role in adhering to data security best practices when handling protected health information (PHI).

Compliance sets its roots from the top levels of leadership. Management’s commitment to compliance is pivotal in dispelling reluctance at lower organizational levels.

It is essential to educate employees about the significance of data security to patients, its impact on the organization, its relevance to their roles, and its mandatory nature. Ensuring that everyone shares a common understanding of the issue’s importance and its relevance can contribute to the cultivation of a culture centered on compliance and data security.

Future of Data Privacy in Healthcare with Snowflake

High-Level Sample End-to-End Flow

Final thought

In the realm of healthcare, data privacy and governance will eternally remain paramount. As long as medical data, with its potential to unveil various associations, is up for grabs, safeguarding it from malicious entities and cyber threats will remain a steadfast obligation.

Fortunately, with Snowflake’s robust security measures, privacy safeguards, collaborative functionalities, and a host of other pioneering features, healthcare organizations, as well as enterprises across diverse sectors, are well-equipped to ensure the safety of their customers and clients sensitive data under all circumstances.

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Marcin Kulakowski
Snowflake Builders Blog: Data Engineers, App Developers, AI/ML, & Data Science

Don't solve a problem, offer a better solution and show the art of the possible. Currently @ Snowflake.