NOMO FOMO party: for people with chronic conditions / plan

This Sunday, I’m throwing a party for people with chronic conditions.

Why?

We’ve all had the unpleasant experience of missing out on a social gathering or event due to a bad cold or flu. However, people with chronic conditions often miss countless parties, happy hours, and vacations they’d been looking forward to. It hurts to miss out on a social life, especially in this age of social media, when it’s impossible to avoid pictures and videos of all the fun experiences that you’re missing out on.

It’s also painful to see that people without a chronic condition often don’t understand how it feels, and they may get frustrated with friends who are constantly bowing out of plans.

Also, we don’t talk about it enough as if it’s a taboo topic that’s gloomy, sad, terrible and scary. However, that doesn’t have to be the truth. A lot of us with chronic condition are NOT suffering from our condition– we are living with it. We should embrace it and make the best out of it.

NOMO FOMO is a party for people with chronic condition where people can celebrate, share and talk about their journey and mingle with one another while having tons of health food and drinks.

<Party Details>

Party Size: ~9 people

  1. C.R — Lower back pain (in remission)
  2. S.H — Back pain, some sort of vertebral disorder
  3. C.C — Binge eating disorder
  4. S.J — Depression
  5. S.L— Polycystic Ovary Syndrome
  6. J.? — Leukemia
  7. E.? — Diabetes (maybe coming)
  8. K.S — Rheumatoid Arthritis and fibromyalgia
  9. A.F — Herniated disc with sciatica

Facts:

  1. Most of them haven’t talked to other people with chronic condition.
  2. Only one person has been to a support group but did not find it helpful. (It was too formal and serious)
  3. Most of them have been diagnosed for more than 1 year.
  4. More than half of the people are fine with talking about their condition. Rest of them are still feeling not too confident.

Date: December 11th.

Location: Lounge area at 95 Wall.

Overall tone: Welcoming. Vibrant. Comfortable. Open-minded. Casual.

Food: Considerate of all dietary restrictions and preferences. Will collect survey.

To Understand:

  1. What are people’s motivations to come to the party?
  2. What do people experience from hanging out and sharing their stories with other people with chronic conditions. Buddy system?
  3. Feelings: Do they feel more relatable? Do they feel more comfortable? Do they feel support and understanding? What do they feel in general?
  4. What are some of the difficulties and struggles they face? Do they overlap? Do they differ for different stages or conditions?
  5. What people

<Activity Flow>

1. Name tag exercise (15min)

Have guests make and decorate their name tag to talk about themselves and their condition.

2. Get Food

Walk around the lounge area and get food. Casually chat and connect with other people.

3. Intro (30min)

  • About the Event
  • People can share their name, condition and other things they’d like to share with other people.

4. Activity

  • First Activity : Purpose (15min)
Have them write it down and shuffle and read each other’s answers.
  • Second Activity : Sharing Journey (5min each)
People can draw the graph and share 1 or 2 highlights.
Everyone can share stories
Talk about different pain-points. Everyone takes a chance to suggest a tip or advice.

5. Closing

  • Did you have fun?
  • What have you learned?
  • EAT MORE and MINGLE