Achondroplasia

I’ve gotten used to the double takes. People see Cooper, look away and then look back. I can see it on their faces. They’re trying to figure out what exactly is going on. At first glance she looks about 1 ½, but then you realize, no, she’s older than that. …

October 25th marks a special day on our calendar. It’s Dwarfism Awareness Day, a day to celebrate our unique life journey decided by a genetic mutation affecting my son’s bone growth. It’s also a day to highlight some of the challenges people with dwarfism face and raise some awareness. As…

I am the mother of a child with Achondroplasia。 I hope that my knowledge, though limited may offer some piece of mind. Being that there are over two hundred types of dwarfism, and I am not familiar with but a few; I hope that what I have written helps all…