ProEd RegulatoryFDA Decision for Sarepta’s Gene Therapy for DMD Sets New Regulatory PrecedentHistoric Regulatory Decision for First FDA-Approved Gene Therapy for DMDAug 10, 2023
Barnabe FreixoSeeing the light in face of adversityPeople often ask me how I’ve dealt with something as tricky as learning my son has Duchenne muscular dystrophy. Honestly, I do not have an…Dec 28, 2021
Dwayne GoldenA Family Of Love & Fight!The unimaginable happened to the loving Gunther family of four when Steve & Vanessa’s seven-year-old son Drew was diagnosed with Duchenne…Mar 1, 2023Mar 1, 2023
Jon HastieI’m gay, disabled and need 24/7 care — hardly the greatest dating profileI have just had an incredible week and as a result, now have a boyfriend. In 2016, when being gay in the western developed world is…Oct 24, 20162Oct 24, 20162
Lee Ann Williams-FaethPerspective.Living as a single mom, with 2 teens at different schools and one living with a life-limiting illness is not for the faint of heart. It has…Jan 25, 2023Jan 25, 2023
ProEd RegulatoryFDA Decision for Sarepta’s Gene Therapy for DMD Sets New Regulatory PrecedentHistoric Regulatory Decision for First FDA-Approved Gene Therapy for DMDAug 10, 2023
Barnabe FreixoSeeing the light in face of adversityPeople often ask me how I’ve dealt with something as tricky as learning my son has Duchenne muscular dystrophy. Honestly, I do not have an…Dec 28, 2021
Dwayne GoldenA Family Of Love & Fight!The unimaginable happened to the loving Gunther family of four when Steve & Vanessa’s seven-year-old son Drew was diagnosed with Duchenne…Mar 1, 2023
Jon HastieI’m gay, disabled and need 24/7 care — hardly the greatest dating profileI have just had an incredible week and as a result, now have a boyfriend. In 2016, when being gay in the western developed world is…Oct 24, 20162
Lee Ann Williams-FaethPerspective.Living as a single mom, with 2 teens at different schools and one living with a life-limiting illness is not for the faint of heart. It has…Jan 25, 2023
Cure Rare DiseaseFinding The Perfect Home For Our DMD Family’s NeedsWritten by Liz Duffy; Read the original Cure Rare Disease post here.Jul 27, 2020
InPurdue Engineering ReviewbyPurdue College of EngineeringHunting for early biomarkers of Duchenne muscular dystrophyTrackers are fabled for their ability to detect faint traces of the object of their search to stay on the trail. Now engineering and…Jun 3, 2022
Sai MarieWhat I’ve Learned as the Mother of Two Terminally Ill BoysDuchenne Muscular Dystrophy’s Effects on a MomMay 28, 2022
