Despina KarrasAs MDA Executives Line their Pockets, People with Neuromuscular Diseases are Paying the Price.The Muscular Dystrophy Association continues fundraising with the International Association of Fire Fighters during Fill the Boot campaigns…Jul 16
Despina KarrasThe Muscular Dystrophy Association’s Questionable Payments to the IAFF Continue During Fill the…More and more fire fighters are discovering that the money they are collecting isn’t going where they think it’s going.Mar 10
BioViva ScienceFrom Approval to Access: Why Muscular Dystrophy Needs Best Choice Medicine“Having a child that is dying is the most painful thing in the world. The only thing that is more painful is having a child that is dying…May 29May 29
Jennifer BroutDo you or your family members have FSHD Muscular Dystrophy?Jennifer Brout ,Michele Langer, Kristen ZwickauReviewed for technical accuracy by Peter Jones, Associate Professor, Mick Hitchcock Endowed…Mar 14, 20231Mar 14, 20231
Dominic DunninROYAL REPORTResearch straight from the heartEric Puumala, Callie Knapp and professor Jackie Towner study a deadly disease, hoping to lay the groundwork for future studies. The things…May 19May 19
Despina KarrasAs MDA Executives Line their Pockets, People with Neuromuscular Diseases are Paying the Price.The Muscular Dystrophy Association continues fundraising with the International Association of Fire Fighters during Fill the Boot campaigns…Jul 16
Despina KarrasThe Muscular Dystrophy Association’s Questionable Payments to the IAFF Continue During Fill the…More and more fire fighters are discovering that the money they are collecting isn’t going where they think it’s going.Mar 10
BioViva ScienceFrom Approval to Access: Why Muscular Dystrophy Needs Best Choice Medicine“Having a child that is dying is the most painful thing in the world. The only thing that is more painful is having a child that is dying…May 29
Jennifer BroutDo you or your family members have FSHD Muscular Dystrophy?Jennifer Brout ,Michele Langer, Kristen ZwickauReviewed for technical accuracy by Peter Jones, Associate Professor, Mick Hitchcock Endowed…Mar 14, 20231
Dominic DunninROYAL REPORTResearch straight from the heartEric Puumala, Callie Knapp and professor Jackie Towner study a deadly disease, hoping to lay the groundwork for future studies. The things…May 19
Despina KarrasThe Muscular Dystrophy Association’s Mismanagement and Scandals, Three Years Later.Today marks three years since I posted my first article, I Supported the Muscular Dystrophy Association All of My Life, Now I’m Warning…Nov 16, 2023
Marybeth CamboniHow Rare and Beautiful It Is To Even ExistEvery child with a neuromuscular disease is invited to attend MDA Camp, sponsored by the Muscular Dystrophy Association, starting at age 8…Feb 29
Despina KarrasWhat’s in the Muscular Dystrophy Association’s latest tax returns?The Muscular Dystrophy Association finally released their 2020 990 tax forms, and here’s just a few interesting finds from their filings.Oct 4, 2021