Muscular Dystrophy

A year and two months ago, in January 2022, I found out that I have myotonic dystrophy, one of the seven major categories of muscular…

Peter had recently celebrated his 18th birthday and was excited for what the rest of the year held for him. Little did he know that his life would be changed in a few short weeks. One day, while at the doctor’s office, Peter was given the shock of a lifetime…

The unimaginable happened to the loving Gunther family of four when Steve & Vanessa’s seven-year-old son Drew was diagnosed with Duchenne Muscular Dystrophy (DMD) on February 14, 2019. DMD is a rare and 100% fatal genetic muscle wasting condition that primarily affects boys. …

MDA’s Latest Fundraising Plea is Less than Honest It’s November, which means Giving Tuesday will be here soon. Many nonprofits ramp up their fundraising efforts this day and the 5–6 weeks until the end of the year. …

This short story will tell you how I came to know about this term and how scary it is. Prima facie this term looks like just another disease of human body. But medically it is a death sentence as there is no cure available for muscular dystrophy. …

It’s early August, and my Facebook memories are flooded with photos from MDA Camps from years gone by. It was always a fun time — even more so when I became an adult and would go on visitor’s day to see all my friends from years past. I love these…

Wasting my muscles, not my life! In 2008, I was diagnosed with muscular dystrophy (Fasioscapulo humeral muscular dystrophy) but I have been living with this condition since the time I was born. I may not exactly describe how this body feels to me, but that awkwardness and that uncomfortableness can be related to the one when…

My Personal Experience with MD — This Comedian’s Death Brings Back Painful Childhood Memories When I saw (via Twitter) that Gilbert Gottfried died, I recognized the name but couldn’t remember where I saw him. Then I saw his face and oh yeah, I remember now. The movie I best remember him from was Problem Child (1990) where Gottfried played the adoption agent (antagonist) who’d…