Chuck HoweMy Grandson’s Experience with Duchenne Muscular DystrophyBy: Chuck Howe, grandfather of Tucker, who lives with Duchenne muscular dystrophy (DMD).2d ago
InThe Hub PublicationbyCourtney WallerIs Public Exposure Worth My Child’s Privacy?Should parents of medically fragile children be exempt from the backlash against family vlogging?Aug 2818
The Assistance Fund (TAF)Still Traveling The WorldBarbara’s story of finding TAF assistance.Sep 10Sep 10
InBelovedbyCourtney WallerShards of GlassPicking Up The Pieces When Your Glass Child ShattersAug 165Aug 165
Courtney WallerGrief in the Absence of GodMy daughter died on Friday, February 16th. She was 10 years old.Mar 528Mar 528
Chuck HoweMy Grandson’s Experience with Duchenne Muscular DystrophyBy: Chuck Howe, grandfather of Tucker, who lives with Duchenne muscular dystrophy (DMD).2d ago
InThe Hub PublicationbyCourtney WallerIs Public Exposure Worth My Child’s Privacy?Should parents of medically fragile children be exempt from the backlash against family vlogging?Aug 2818
Courtney WallerGrief in the Absence of GodMy daughter died on Friday, February 16th. She was 10 years old.Mar 528
phaware global association®I’m Aware That I’m Rare: Hall Skaara (Bel Air Center) (498)the phaware® interview4d ago
InThe Quantastic JournalbyCourtney WallerThe Treatment That Came Too LateA Clinical Trial May Be On the Way, But My Daughter Is Already GoneAug 78
InHealth decodedbyInvitae® (a Labcorp company)Genetic testing helps one family navigate a challenging diagnosisWhen little Meaghen stopped meeting her developmental milestones, a genetic test helped her parents find better supportNov 21
