I was supposed to have my genetics appointment in September for a connective tissue evaluation. I missed my appointment because I had to get tested for COVID-19. Now I won’t be going until April 2021, as long as COVID doesn’t mess it up again.
A good portion of the family on my mother’s paternal side fit a hypermobile Ehlers-Danlos Syndrome (hEDS) diagnosis, some with Marfan’s features. My youngest fits the criteria, as does my oldest, while my middle daughter, has the signs of Classic Ehlers-Danlos Syndrome (cEDS.) …
It’s been 42 days since I last left my house. It would have been longer, but I had to brave a walk-in clinic at the beginning of this pandemic because my 11-year-old daughter was suffering from extreme ear pain. Of our family of five, the only one who has left in this time span is my husband. He works in the transportation industry and has been considered an “essential employee.” Each of us is dealing with our new normal in our own way. Today, I’m dealing with it by sharing my perspective with you.
Physically, I’m slowly breaking down, with…
Many parents and kids across the United States have recently found themselves thrust into the world of home education, without warning, without a plan, and without adequate support. As a homeschool veteran, who’s been going at this for the past 12 years, I want you to know that it’s going to be okay, and you can do this.
A big concern I’ve seen from parents is that they do not have adequate internet or technology available for their children to learn at home. …
If you’ve been keeping up with the saga that is my declining health, as well as the health issues my kids have to deal with, I want to apologize for disappearing for a few weeks. I’m constantly fatigued and something is always hurting. The pain and new symptoms have picked up their pace, along with the visible appearance of it all.
It becomes hard to ignore how an illness is wearing you down when the receptionist at physical therapy, that you see twice a week, ask you one day if you are sick because you, “look rough today.”
Let me start this by saying I am not a medical professional. I am simply a mom that has children with medical and psychological needs, that has read enough published medical pieces to make most people’s eyes glaze over.
Parenting, Homeschooling, Chronic Illness, and Asshole Cats!