Cystic Fibrosis is the most common fatal genetic disease affecting Canadian children and young adults.
When diagnosed, life expectancy drops to 48.
Discovering someone close to you has this disease can be devastating, especially because there is no cure.
Up until a week ago, I did not know much about this fatal illness.
The opportunity to become apart of my school’s Shimerama team surfaced and I jumped at it.
Shinerama is Canada’s largest post-secondary fundraiser in support of Cystic Fibrosis Canada.
I am thrilled to be involved.
First up, I had learn about Cystic Fibrosis.
Did you know that 1 in 3600 kids born in Canada have cystic fibrosis?
Fifty percent of Canadians with cystic fibrosis are diagnosed by six months of age,and 73 percent are diagnosed by the age of two.
I did not know that either.
Each week in Canada, two children are diagnosed and one person dies from this disease.
When does Cystic Fibrosis occur?
It occurs only when a child inherits two defective copies of the gene responsible for cystic fibrosis.
So… one from each parent.
And what are the odds?
One in 25 Canadians is a cystic fibrosis carrier, with one defective version of the gene responsible for this life-altering disease.
Many people are unaware that they are carriers.
As I said, there is no cure.
Yet, on average, a person with cystic fibrosis spends the equivalent of four months of full-time work doing life-sustaining treatments every year.
So I guess the question that lays over me is, how can I help?
How can a fundraiser like Shinerama help the people living with this tragic illness?
After joining my university’s Shinerama team I learned more about the fundraiser.
I learned that Shinerama is Canada’s largest post-secondary fundraiser in support of Cystic Fibrosis with over 35,000 student volunteers from 60 Canadian universities participating.
Since 1964 Shinerama has raised nearly $25 million dollars for life-saving CF research and care.
I know this does not fix the problem, but it sure does help.
Putting on events such as shoe shining, flipping burgers, washing cars and more, Shinerama does whatever it takes to raise the crucial funds to fight cystic fibrosis.
This is something I am proud to be apart of.
I hope that Shinerama continues to grow and raise more awareness for Cystic Fibrosis.
This illness is affecting many Canadians everyday.
And Shinerama is a way to help.