Will GreeneFrom Mila to millions: ultra-rare diseases, individualized medicines, and a promising new frontier…When Julia Vitarello’s once healthy, outgoing daughter, Mila, was diagnosed in 2016 with Batten disease, a rare and uniformly fatal genetic…Mar 13Mar 13
Will GreeneRare genetic disease can strike your family tooWhen our son was diagnosed in early 2022 with Prader-Willi syndrome (PWS), a rare and serious genetic disease with a frightening prognosis…Feb 24Feb 24
Will GreenePWS fundraiser update: USD $90,000 donated for medical research!When our son Ari was diagnosed in January 2022 with Prader-Willi syndrome (PWS), a rare and serious genetic disease with limited treatment…Sep 10, 2023Sep 10, 2023
Will GreeneFacing our fears about Prader-Willi syndromeIn the months since little Ari was diagnosed with Prader-Willi syndrome (PWS), Vy and I have consistently tried to remain optimistic…May 21, 20221May 21, 20221
Will GreeneCaring for an infant with PWS: the first few monthsWhen our son Ari was diagnosed with Prader-Willi Syndrome (PWS), my partner and I had to develop a treatment plan. Here’s what we learned.Apr 3, 20221Apr 3, 20221
Will GreeneAsia expats beware: your health benefits might leave you hangingIf you come from a Western country and expect your employer or host country to take care of your health, you may be in for a rude…Mar 10, 20221Mar 10, 20221
Will GreeneWho cares about Rare Disease Day?For most of my life, I never paid much attention to Rare Disease Day, an international event that is held on the last day in February each…Feb 13, 2022Feb 13, 2022
Will GreeneSearching for hope after a Prader-Willi diagnosisAfter weeks of anxious waiting, my partner and I received news last week that little Ari tested positive for Prader-Willi Syndrome (PWS)…Jan 30, 2022Jan 30, 2022
Will GreeneShould little Ari get his whole genome sequenced?Of the hundreds of messages that Vy and I received after we published a long post last week about our son Ari, who was born on December 23…Jan 6, 20221Jan 6, 20221
Will GreeneWhat’s wrong with little Ari?On December 23, my partner and I welcomed our firstborn child into the world at Mount Elizabeth Novena Hospital in Singapore. We both…Dec 30, 20211Dec 30, 20211
