Boomer Anderson, Marcel van der Kuil: Participant Perspectives on Regulation of Research
I was an avid self-experimenter in an ad-hoc way. But two years ago I was diagnosed with heart disease and I thought ‘maybe I should learn how to actually structure an experiment properly’. — Boomer Anderson
In this brief discussion, participatory research leader Dana Lewis chats with two Blood Testers, Boomer Anderson and Marcel van der Kuil, about personal attitudes toward privacy, data sharing, experiment design, and the ethics of the Blood Testers project.
Highlights from the QS Symposium 2018
Introduction to the Quantified Self Symposium 2018
Reza Mirza: The History and Future of Single-Subject Science
Hugo Campos: 10 Years With An Implantable Cardiac Device, Still No Data Access
Jana Beck: Carb Intake and 60 Lipid Measurements
Azure Grant: Lessons from Blood Testers, a Participant-Led Project
Dorothy D. Sears: Circadian Rhythms and Cardiometabolic Health
Carsten Skarke: Characterizing the Chronobiome with “Supertrackers”
Whitney E. Boesel: Cholesterol Variability Across Postpartum Menstrual Cycles
Xiao Li: Finding the Signal in Rich Self-Collected Data
Jeffrey Olgin: Data Aggregation for N-of-1 to “N-of-Many-Ones”
Dana Lewis: Social Infrastructure for Participant-Led Research
Camille Nebeker: Informed Consent, Self-Consent
Steven Steinhubl: Where “All of Us” Meets All of Us
Sunita Vohra: What N-of-1 Can Do
