Dana Lewis: Social Infrastructure for Participant-Led Research
[There’s a] perception that community, citizen or QS research is not as ‘good’ as other research. Why? Because I don’t have a PhD; as if a PhD were the magic credential that makes everything real. That’s wrong.
— Dana Lewis
Dana Lewis is a passionate advocate of research that is patient centered, patient driven, and patient designed. The #OpenAPS movement she founded has generated over 4 million hours of artificial pancreas use, far exceeding the 150,000 hours typically generated in a clinical trial. Her talk shares progress in the #OpenAPS project since it’s inception two years ago and lays out possibilities and barriers to bringing these methods to other patient and activist communities.
Highlights from the QS Symposium 2018
Introduction to the Quantified Self Symposium 2018
Reza Mirza: The History and Future of Single-Subject Science
Hugo Campos: 10 Years With An Implantable Cardiac Device, Still No Data Access
Jana Beck: Carb Intake and 60 Lipid Measurements
Azure Grant: Lessons from Blood Testers, a Participant-Led Project
Dorothy D. Sears: Circadian Rhythms and Cardiometabolic Health
Carsten Skarke: Characterizing the Chronobiome with “Supertrackers”
Whitney E. Boesel: Cholesterol Variability Across Postpartum Menstrual Cycles
Xiao Li: Finding the Signal in Rich Self-Collected Data
Jeffrey Olgin: Data Aggregation for N-of-1 to “N-of-Many-Ones”
Dana Lewis: Social Infrastructure for Participant-Led Research
Camille Nebeker: Informed Consent, Self-Consent
Steven Steinhubl: Where “All of Us” Meets All of Us
Sunita Vohra: What N-of-1 Can Do
