Dana Lewis: Social Infrastructure for Participant-Led Research
[There’s a] perception that community, citizen or QS research is not as ‘good’ as other research. Why? Because I don’t have a PhD; as if a PhD were the magic credential that makes everything real. That’s wrong.
— Dana Lewis
Dana Lewis is a passionate advocate of research that is patient centered, patient driven, and patient designed. The #OpenAPS movement she founded has generated over 4 million hours of artificial pancreas use, far exceeding the 150,000 hours typically generated in a clinical trial. Her talk shares progress in the #OpenAPS project since it’s inception two years ago and lays out possibilities and barriers to bringing these methods to other patient and activist communities.
Highlights from the QS Symposium 2018