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The Hodgkin Chronicles
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XXIV: 20 Things that brought me joy in 2020
XXIV: 20 Things that brought me joy in 2020
Ah 2020. At this point it feels cliche to observe that the past year has been challenging for everyone — but still, it has. For me the…
John Tobben
Dec 28, 2020
XXIII: PETs and pets
XXIII: PETs and pets
Let’s start with good news. My PET scan this month showed no evidence of recurrent or residual disease. Eight months out from treatment…
John Tobben
Jul 27, 2020
XXII: One year, faded
XXII: One year, faded
In psychology there’s a phenomenon called the fading affect bias. It describes the way that the emotions tied to negative memories tend to…
John Tobben
Jun 23, 2020
XXI: Hope for “Normal”
XXI: Hope for “Normal”
In the days following my diagnosis of recurrent Hodgkin Lymphoma last June, my thoughts slowly shifted from the initial “Am I going to…
John Tobben
May 13, 2020
XX: Remission in a Time of Coronavirus
XX: Remission in a Time of Coronavirus
There’s something surreal about watching the world grapple with an existential health crisis just months after doing the same on a personal…
John Tobben
Mar 8, 2020
XIX: Recovering
XIX: Recovering
It’s been a while. The last time I posted an entry was day +14, just four days after returning home from the hospital. Today is day +52…
John Tobben
Jan 3, 2020
XVIII: Stem Cell Transplant, Unfiltered
XVIII: Stem Cell Transplant, Unfiltered
This past Friday (day T+10) I was discharged home from the hospital. All told I spent 19 days on the 8th floor of UVA Hospital in the stem…
John Tobben
Nov 26, 2019
XVII: A Gasp of Air
XVII: A Gasp of Air
Chemo brain has sapped me of my typical loquaciousness so I’ll keep this brief. Yesterday I completed the final dose of conditioning…
John Tobben
Nov 11, 2019
XVI: Into the Fire
XVI: Into the Fire
Like all the steps that came before it, stem cell mobilization and collection proceeded smoothly. After four days of daily subcutaneous…
John Tobben
Nov 1, 2019
XV: Out of the Frying Pan
XV: Out of the Frying Pan
Phase one of treatment is officially over. Following four rounds of salvage chemotherapy with Brentuximab and Bendamustine, I’ve achieved…
John Tobben
Oct 18, 2019
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