Things No Child Should Get Used To

A few weeks ago, we went to the children’s hospital for an appointment. We walked through the…

We All Make Mistakes

When I was growing up, there was a family across the street from us that had two boys. One was my age, the other a little…

Epilepsy, The Future, And The Battle Between The Heart And The Mind

If you ask my son what he wants to be when he grows up, he always leads with “a hockey player”. Sometimes he’ll add another sport, or perhaps a doctor, but everything starts with and revolves around first being a…

Owning My Duality And Being Seen

“Well,” I said, “twenty minutes before I got here, I watched my son have a seizure on the living room…

What Got Me Here

“How are you doing?”

It’s such a loaded question. I fear that if I gave the real answer, it would…

The Impossible Choice And The VNS

There are still days when I think that this is all temporary and that my son will someday outgrow…

The Absence Of Obligation

The music pumped through my earbuds and filled my ears and mind as I crossed the bridge towards University City…

Reality Always Wins

It’s easy to let denial take the lead. If we make it a day or a week without any seizures, it’s easy to let what is…

Epilepsy And The Lack Of Freedom

One day last week, after I dropped my son off at school, I walked past the playground and the late…