This is what happened when my son came home from the hospital last month from his 4th hospital stay in as many weeks.

I had to unpack all the hospital stuff — my clothes and Lowell’s — and wash them immediately along with the blanket and pillow…

It’s February 22, 2018, exactly 5 years to the day after the first surgery when my son Lowell’s Crohn’s disease…

Chronic Illness and Feeling like an Outsider

Caring for my son with Crohn’s disease

I am on the outskirts of my community. My days revolve around my son Lowell’s state of health on that particular day. He is 15 years old and has severe Crohn’s…

It’s summer. Again. We are at Cedars. Again. Our hospital in Los Angeles, is our home away from home.

Last summer at the end of June in the middle of the night, my husband and I sat in the waiting room I am currently sitting in, while the surgeon re-did my…

“We are going to the ER.” “Right now” I say? Lowell and Sam have just arrived at the Highline Ballroom where my…

Caregivers Month, Bowel Blockages and not Having all the Answers

Dear Friends:

Over the years since Lowell has been sick to varying degrees, my energy and attention has been required for so many of the medical…

Can you pick me up at 10? My stomach is hurting and isn’t getting better.

a text from my son

My son’s pain is like another member of our family. It is there even when it is not there because it can strike at any moment and there are rarely days that it…

This is a blog post I wrote early this morning…..read on to find out why.

I turned on the TV when we arrived in room 4003 at Cedars-Sinai Medical Center on November 8, 2016 after 11PM PST.

We always request an odd room as it faces the south side of the hospital and overlooks 2 central patios where a new calming garden has…