The Scope:Diverse Perspectives on IBD

Dear Friends:

Over the years since Lowell has been sick to varying degrees, my energy and attention has been required for so many of the medical…

I blog because…

If you had told me a year ago that I would be writing about Crohn’s disease, ulcerative colitis (together known as Inflammatory Bowel Disease or IBD), and celiac disease, I would have been surprised; I am a homemaker, a planner, a maker of t0-do lists. Last year, I started freelancing for the…

Chronic Illness is a Family Affair

Recently my 19-year-old son Jonah traveled with Lowell (16), who has been battling severe Crohn’s since he was 2, on a family trip with a few of his aunts, uncles and cousins one day earlier then we were to arrive. I instructed Jonah to make sure Lowell drank enough…

It’s summer. Again. We are at Cedars. Again. Our hospital in Los Angeles, is our home away from home.

Last summer at the end of June in the middle of the night, my husband and I sat in the waiting room I am currently sitting in, while the surgeon re-did my…

Dear Olivia: An Open Letter to My Fellow Patients

Chronic Illness and Feeling like an Outsider

Caring for my son with Crohn’s disease

I am on the outskirts of my community. My days revolve around my son Lowell’s state of health on that particular day. He is 15 years old and has severe Crohn’s…

If only I found the right _________I could cure my son’s Crohn’s Disease

My IBD community consists of parents, spouses, partners and other family members all of whom spend so much of time advocating for loved ones in every way imaginable.

Can you pick me up at 10? My stomach is hurting and isn’t getting better.

a text from my son

My son’s pain is like another member of our family. It is there even when it is not there because it can strike at any moment and there are rarely days that it…