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Leukodystrophy Awareness

  • VWM has a face around the globe
  • VWM Angels
  • Awareness
  • Little Darling Aria

    Little Darling Aria

    Aria was born on 5–10–2019, alongside her twin brother Axel. Aria’s life started off by achieving normal milestones as you would expect in…
    Go to the profile of Find a Cure for VWM
    Find a Cure for VWM
    Nov 13, 2020
    Dapper Dax

    Dapper Dax

    On November 30, 2015, we welcomed our perfect, seemingly healthy baby boy into the world.
    Go to the profile of Find a Cure for VWM
    Find a Cure for VWM
    Sep 30, 2020
    Loving Siblings: Gabriel and Letícia

    Loving Siblings: Gabriel and Letícia

    Gabriel is 8 years old and Letícia 5 years old, both are bearers of Leukodystrophy, Vanishing White Matter Disease (VWM).
    Go to the profile of Find a Cure for VWM
    Find a Cure for VWM
    Sep 13, 2020
    Princesa Lara

    Princesa Lara

    Lara is a charming three-year-old girl. She was diagnosed with vanishing white matter disease (VWM) in 2019 at two and a half years old…
    Go to the profile of Find a Cure for VWM
    Find a Cure for VWM
    Sep 7, 2020
    HENRIQUE NETO STORY OF LEUKODYSTROPHY OF VANISHING WHITE MATTER from MANAUS/AMAZONAS/BRASIL

    HENRIQUE NETO STORY OF LEUKODYSTROPHY OF VANISHING WHITE MATTER from MANAUS/AMAZONAS/BRASIL

    On October 4, at school, he had 6 seizures, being referred to an emergency hospital, where he remained in hospital for 45 days performing…
    Go to the profile of Find a Cure for VWM
    Find a Cure for VWM
    Sep 6, 2020
    Latest
    Noah The Real Superhero

    Noah The Real Superhero

    We first noticed that something wasn’t quite right when Noah started walking, he would complain of pain in his legs and wake up at night…
    Go to the profile of Find a Cure for VWM
    Find a Cure for VWM
    Jul 18, 2019
    My Dearest Matthew

    My Dearest Matthew

    Matthew was born on 14th November 1989. He was a good weight and all early developmental milestones were met. At around the time of his…
    Go to the profile of Find a Cure for VWM
    Find a Cure for VWM
    Jan 9, 2019
    Sweet Baby Vance

    Sweet Baby Vance

    As a father, all you want to do is provide for and protect your family. There is a welcome ignorance to the dangers in life, the fact that…
    Go to the profile of Find a Cure for VWM
    Find a Cure for VWM
    Sep 27, 2018
    Tadan’s Journey

    Tadan’s Journey

    Tadan was born a normal boy. Bubbly, chunky and happy baby. He hit all milestones but never got a full run.
    Go to the profile of Find a Cure for VWM
    Find a Cure for VWM
    Sep 20, 2018
    VWM Art Auction

    VWM Art Auction

    About Our Auction
    Go to the profile of Find a Cure for VWM
    Find a Cure for VWM
    Sep 27, 2017

    VWM Pie Face Challenge

    It’s pie face challenge time! For the month of September and October VWM Families Foundation is running a pie face challenge to raise money…
    Go to the profile of Find a Cure for VWM
    Find a Cure for VWM
    Sep 6, 2017

    VWM Rare yet Everywhere

    Vanishing White Matter Disease (VWM) Leukodystrophy is a degeneration of the brain. VWM is one of 52 different leukodystrophies. VWM has a…
    Go to the profile of Find a Cure for VWM
    Find a Cure for VWM
    Mar 30, 2017
    Alice: One of a Kind

    Alice: One of a Kind

    So the time has come for me to finally put pen to papering write Alice’s story. I have tried on many occasions over the past three years to…
    Go to the profile of Find a Cure for VWM
    Find a Cure for VWM
    Mar 29, 2017
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