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Leukodystrophy Awareness
VWM has a face around the globe
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Noah The Real Superhero
Noah The Real Superhero
We first noticed that something wasn’t quite right when Noah started walking, he would complain of pain in his legs and wake up at night…
Find a Cure for VWM
Jul 18
My Dearest Matthew
My Dearest Matthew
Matthew was born on 14th November 1989. He was a good weight and all early developmental milestones were met. At around the time of his…
Find a Cure for VWM
Jan 9
Sweet Baby Vance
Sweet Baby Vance
As a father, all you want to do is provide for and protect your family. There is a welcome ignorance to the dangers in life, the fact that…
Find a Cure for VWM
Sep 27, 2018
Tadan’s Journey
Tadan’s Journey
Tadan was born a normal boy. Bubbly, chunky and happy baby. He hit all milestones but never got a full run.
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Sep 20, 2018
VWM Art Auction
VWM Art Auction
About Our Auction
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Sep 27, 2017
Latest
VWM Pie Face Challenge
It’s pie face challenge time! For the month of September and October VWM Families Foundation is running a pie face challenge to raise money…
Find a Cure for VWM
Sep 6, 2017
VWM Rare yet Everywhere
Vanishing White Matter Disease (VWM) Leukodystrophy is a degeneration of the brain. VWM is one of 52 different leukodystrophies. VWM has a…
Find a Cure for VWM
Mar 30, 2017
Alice: One of a Kind
Alice: One of a Kind
So the time has come for me to finally put pen to papering write Alice’s story. I have tried on many occasions over the past three years to…
Find a Cure for VWM
Mar 29, 2017
Family….it’s everything!
Family….it’s everything!
Family — where would you be without them?
Find a Cure for VWM
Mar 5, 2017
Crowdfunding for Life
Crowdfunding for Life
This Rare Diseases Day (February 28, 2017) will be a particularly hopeful one for families of children suffering from Vanishing White…
Find a Cure for VWM
Feb 23, 2017
I Run For Isabella
I Run For Isabella
Register here —http://events.eventzilla.net/e/2018-rare-disease-day-virtual-5k-for-vwm-2138946282
Find a Cure for VWM
Feb 7, 2017
Precious Natalie
Precious Natalie
“What we have once enjoyed and deeply loved we can never lose, for all that we love deeply becomes a part of us” …..In loving memory of…
Find a Cure for VWM
Feb 7, 2017
Darling “Cerise” Cherry
Darling “Cerise” Cherry
Cherry is a darling three and half years old little girl. Little more than one year ago her parents learned that she has Vanishing White…
Find a Cure for VWM
Jan 20, 2017
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