Lyme Disease Warrior

Progress Report: October 2018

It’s been over two years since I’ve updated everyone on my progress. There are multiple reasons for that, some of which I’ll try to explain in this post. I’ll just start out by saying that I am better, but not better enough to have much of a life. I basically stay home unless…

The cold

One of the strange side effects of those with chronic Lyme disease is that we don’t tend to get a lot of colds. In fact, the last time I can remember having a cold was in 2011, when I visited Brighton, England to speak at the Full Frontal conference. The visit happened to be during November and I remember…

When your health costs you your job

My last day at Box was April 12, 2016. The day came and went quietly. No mass email saying goodbye, no celebration for a new chapter of my life. I had already sent out a few personal goodbye emails four weeks earlier, and I’m sure there were some who only discovered…

A not-so-bad week

I’ve been struggling mightily recently, and haven’t really had the extra energy to update this blog. (I also wanted to wait until I had something interesting to report.) This past week was, for some reason a not-so-bad week. After weeks of binge watching Netflix, Hulu, and Amazon Prime because I…

Progress Report: January 2016

Last year was a difficult one overall for me. I ended up changing doctors in February because I hadn’t seen any tangible improvement in my symptoms and I was continuing to lose weight at a fairly rapid clip. By springtime, I was down to a somewhat horrifying 125 lbs. (I’m…

The setback

I don’t remember falling. I remember tripping and feeling pain in my foot, and then I remember being on the ground. And there I sat for what seemed like an eternity, my left leg out straight, my right knee pulled to my chest so my right foot could rest directly on the ground. I didn’t know what was wrong…

Progress Report: May 2015

It’s been a while since I’ve posted anything, and that’s mostly because my health kept getting worse since my last post. I spent nearly all of 2014 dutifully following my doctor’s orders for treating Lyme disease, babesia, and bartonella, and yet by the end of 2014 I was feeling…

Chronic illness without suffering, Part 1: Meeting your body

Suffering is a state of mind, not a state of body. Understanding that you are not your body is the first step towards relieving suffering.