Boomer Anderson, Marcel van der Kuil: Participant Perspectives on Regulation of Research
Boomer Anderson, Marcel van der Kuil: Participant Perspectives on Regulation of Research
I was an avid self-experimenter in an ad-hoc way. But two years ago I was diagnosed with heart disease and I thought ‘maybe I should learn…
Dana Lewis: Social Infrastructure for Participant-Led Research
Dana Lewis: Social Infrastructure for Participant-Led Research
[There’s a] perception that community, citizen or QS research is not as ‘good’ as other research. Why? Because I don’t have a PhD; as if a…
Jeffrey Olgin: Data Aggregation for N-of-1 to “N-of-Many-Ones”
Jeffrey Olgin: Data Aggregation for N-of-1 to “N-of-Many-Ones”
“Within a few days we were able to identify the 20 most common triggers of atrial fibrillation. People with those triggers will be micro…
Katherine Kim: What Counts as Clinical Data?
Katherine Kim: What Counts as Clinical Data?
“For the top 10% of people likely to be readmitted to the hospital, the best predictor of actual readmission was self-reported data.”…
Xiao Li: Finding the Signal in Rich Self-Collected Data
Xiao Li: Finding the Signal in Rich Self-Collected Data
Xiao Li is a lead author on the recent paper “Digital Health: Tracking Physiomes and Activity Using Wearable Biosensors Reveals Useful…
Whitney E. Boesel: Cholesterol Variability Across Postpartum Menstrual Cycles
Whitney E. Boesel: Cholesterol Variability Across Postpartum Menstrual Cycles
This might be the first project to look at what human cholesterol does over a regular menstrual cycle at high temporal resolution.
Carsten Skarke: Characterizing the Chronobiome with “Supertrackers”
Carsten Skarke: Characterizing the Chronobiome with “Supertrackers”
Time is an under-appreciated variable in clinical medicine. Only if we understand the variability associated with health can we discern the…
Dorothy D. Sears: Circadian Rhythms and Cardiometabolic Health
Dorothy D. Sears: Circadian Rhythms and Cardiometabolic Health
We need to learn from high frequency measures not just of glucose but body temperature, cortisol, heart rate and blood pressure. They are…
Azure Grant: Lessons from Blood Testers, a Participant-Led Research Project
Azure Grant: Lessons from Blood Testers, a Participant-Led Research Project
“Small group research with participants who are very curious to learn about themselves, in combination with high-temporal resolution…
Jana Beck: Carb Intake and 60 Lipid Measurements
Jana Beck: Carb Intake and 60 Lipid Measurements
“I measured my lipids every other day on a very low carb, moderate carb, and high carb diet. When you really dig into the data it’s quite…
Hugo Campos: 10 Years with an Implantable Cardiac Device and *Almost* No Data Access
Hugo Campos: 10 Years with an Implantable Cardiac Device and *Almost* No Data Access
“In 2007, I learned that my implantable defibrillator could and would be monitored remotely. I was very excited and I asked the doctor…
Reza Mirza: The History and Future of Single-Subject Science
Reza Mirza: The History and Future of Single-Subject Science
Reza Mirza is a resident doctor at McMaster University, and he’s the lead author of “The history and development of N-of-1 trials” in The…