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31 Days of Cystic Fibrosis
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31 Days of Cystic Fibrosis
Your Daughter Has Cystic Fibrosis. I Was a New Mum Dealing With a Seriously Ill Child
Your Daughter Has Cystic Fibrosis. I Was a New Mum Dealing With a Seriously Ill Child
Day 1. A Mother’s story
Sandi Parsons
Apr 30, 2021
I Take a Handful of Tablets Every Time I Eat
I Take a Handful of Tablets Every Time I Eat
Day 2: Enzymes
Sandi Parsons
May 1, 2021
Physio, the Necessary Evil That Saw My Gran Accused of Child Abuse
Physio, the Necessary Evil That Saw My Gran Accused of Child Abuse
Day 3: Physio & Nebs
Sandi Parsons
May 2, 2021
Salt Is the Cystic Fibrosis Version of Fairy Dust
Salt Is the Cystic Fibrosis Version of Fairy Dust
Day 4: Salt, salt, glorious salt
Sandi Parsons
May 3, 2021
Forget Five Feet Apart. People With Cystic Fibrosis Are My Family
Forget Five Feet Apart. People With Cystic Fibrosis Are My Family
Day 5: CF Camps
Sandi Parsons
May 4, 2021
Hospital Felt Like an Extension of Camp
Hospital Felt Like an Extension of Camp
Day 6: Life on the Ward
Sandi Parsons
May 5, 2021
“Put Your Head In a Bucket of Water Three Times & Pull It out Twice”
“Put Your Head In a Bucket of Water Three Times & Pull It out Twice”
Day 7: His words labeled me as the kid who was going to die
Sandi Parsons
May 6, 2021
My Medical Team Didn’t Factor My Mum Into the Equation
My Medical Team Didn’t Factor My Mum Into the Equation
Day 8: Transition of care
Sandi Parsons
May 7, 2021
People Are More Disabled by Physical Barriers or Attitudes and Assumptions Than by Bodily…
People Are More Disabled by Physical Barriers or Attitudes and Assumptions Than by Bodily…
Day 9: The struggle to gain part-time employment in high school
Sandi Parsons
May 8, 2021
All the Signs Pointed in One Direction. Not Fit to Work
All the Signs Pointed in One Direction. Not Fit to Work
Day 10: As an adult, I needed a job to survive
Sandi Parsons
May 9, 2021
If I Wasn’t Going To Be Here for a Long Time, I Was Going To Have a Good Time
If I Wasn’t Going To Be Here for a Long Time, I Was Going To Have a Good Time
Day 11: The road to self-destruction was well signposted
Sandi Parsons
May 10, 2021
Hospital Admissions in the Early 90s
Hospital Admissions in the Early 90s
Day 12: A time when the nurses would join in our shenanigans
Sandi Parsons
May 11, 2021
Burkholderia Cepacia Reared Its Ugly Head and Ripped Our Community in Two
Burkholderia Cepacia Reared Its Ugly Head and Ripped Our Community in Two
Day 13: How the cross-infection policy changed everything
Sandi Parsons
May 12, 2021
Pregnancy Gave Me the Motivation To Defy the Odds
Pregnancy Gave Me the Motivation To Defy the Odds
Day 14: The statistics said I would die soon after giving birth
Sandi Parsons
May 13, 2021
There’s No Point Having a Baby if You Can’t Be a Mother
There’s No Point Having a Baby if You Can’t Be a Mother
Day 15: Juggling Cystic Fibrosis and a baby
Sandi Parsons
May 14, 2021
Growing Up When Your Mum Has Cystic Fibrosis
Growing Up When Your Mum Has Cystic Fibrosis
Day 16: My son’s perspective
Sandi Parsons
May 15, 2021
Hemoptysis: A Fancy Word for a Lung Bleed
Hemoptysis: A Fancy Word for a Lung Bleed
Day 17: I coughed up a liter of blood and drove myself to hospital
Sandi Parsons
May 16, 2021
The Reasonably Good Health I Had Enjoyed Up to This Point Would Not Continue Forever
The Reasonably Good Health I Had Enjoyed Up to This Point Would Not Continue Forever
DAY 18: Traveling with CF
Sandi Parsons
May 17, 2021
Disability Discrimination Was Still Alive and Well in the Noughties
Disability Discrimination Was Still Alive and Well in the Noughties
Day 19: The subtle art of discrimination
Sandi Parsons
May 18, 2021
One Winter Saw My Lung Function Plummet in Freefall
One Winter Saw My Lung Function Plummet in Freefall
Day 20: 2009. The Year of the Swine Flu
Sandi Parsons
May 19, 2021
There’s No Point in Having a Bucket List if You Don’t Tick Things Off
There’s No Point in Having a Bucket List if You Don’t Tick Things Off
Day 21: Egypt with 50% lung function
Sandi Parsons
May 20, 2021
The Chat You Never Want To Have With Your Doctor
The Chat You Never Want To Have With Your Doctor
Day 22: “There’s nothing more I can do for you”
Sandi Parsons
May 21, 2021
I Wasn’t Losing a Battle, I Was Losing the Entire War
I Wasn’t Losing a Battle, I Was Losing the Entire War
Day 23: I put the transplant list on hold to go on holiday
Sandi Parsons
May 22, 2021
I Was Determined To Keep Working While on the Transplant Waitlist
I Was Determined To Keep Working While on the Transplant Waitlist
Day 24: Spoiler alert — I failed
Sandi Parsons
May 23, 2021
The Transplant Process Requires Physical and Mental Strength
The Transplant Process Requires Physical and Mental Strength
Day 25: Staying at home
Sandi Parsons
May 25, 2021
About Speaking Chronically
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