Leukodystrophy Awareness

Mighty Oaks from Little Acorns Grow

You helped make 2016 an amazing year for VWM Research! Thank You !!!

VWM Rare yet Everywhere

Vanishing White Matter Disease (VWM) Leukodystrophy is a degeneration of the brain. VWM is one of 52 different leukodystrophies. VWM has a face around the globe. Currently there is no cure or treatment for VWM. We are in race against time to Find a Cure for VWM ! Time is not on our…

Sweet and Spunky Savannah

My daughter Savannah was born a sweet healthy baby girl on March 18,2002. As she grew she sometimes had trouble with her balance and after a fall at daycare at the age of four we went to her pediatrician where she was diagnosed with having ataxia and an MRI was scheduled for March…

Amazing Angel

Angelica Maria Gallegos “ANGEL” (almost 39 yrs) met her milestones growing up and all seemed normal. She started school and did well in her first couple of years and suddenly her grades dropped.

Love keeps HOPE alive..

“I am only one, but I am one. I cannot do everything, but I can do something. And I will not let what I cannot do interfere with what I can do.”

Saving the Brain’s White Matter with Mutated Mice

Weblog (Medicine & Health) — American Friends of Tel Aviv University

Tuesday, August 17, 2010 4:49:00 PM

Vanishing White Matter (VWM) disease is a devastating condition that involves the…

Emma’s Dazzling Smile

Emma Hope Gilbert was born on October 6th, 2010, a beautiful and seemingly healthy 7 pound 3-ounce bouncing baby girl.

She became an answer to her parent’s prayers and a very welcomed baby as she was the first grandchild on both sides of the family. Ryan and…